An extraordinary real account of life and love. Thank you, Alison, for expressing this piece with just the right words.
Four and a half years ago my doctor came to visit me after Hazel was born. We had not long come home from hospital, after nearly two months in NICU.
I was struggling to cope outside the safe, comforting environment that such places offer – particularly if you are there for any length of time as we were.
I loved her beyond words and yet I struggled to accept her condition. I had taken to my bed, exhausted; emotionally and physically. I was unable to cope with all that had happened. Unable to accept my baby girl had Down’s syndrome.
I did not want to join the club.
The Down’s family. That family with a kid with Down’s. The Down’s girl. Disabled. Special Needs. I imagined the conversations people would have about us.
Labelled. Given a badge. Lifetime membership. I didn’t ask to join. I certainly didn’t want to join.
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